Building Healthcare Capacity in Coban, Guatemala.
Sustainability
Ojalà
It takes me a little while to process what happened over our week in clinic with the students. There are so many events and emotions to take in and digest and then choose the topic to write about and share with you. I hope you have enjoyed reading the previous blogs from the medical team and the students. We have experienced a lot this week. This is my seventh year as a member of the medical team. Side note: thank you very much Lauri Pramuk for inviting for a cup of coffee to sit and discuss this wonderful program those years ago – I’m glad I said yes to going and thank you for your friendship and the friendships that have been built along the way!! As the pharmacist on the team, I am responsible for filling prescriptions and counseling our patients with their medications. I do this in my daily work as a community pharmacist. This year was different. I had the added responsibility to oversee the Prayer component of our daily clinic schedule. Once the prescriptions were filled and patient counseling was completed, the two students working in the pharmacy with me invited our patients to take a moment with us for quiet reflection or prayer before leaving clinic for the day.
We had our prayers written out in our clinic handbooks and had practiced reciting them during our weekly preparation meetings. I am not a native Spanish speaker as many of the students are not. So correct pronunciation and accent placement on certain words was a bit trying at times. Our students and I did our best and our patients were more than kind accepting our foibles with speaking Spanish. I found the students felt more comfortable reciting the same prayer each time they led our prayer circle with a different patient. It was always a treat for me to hear one of our native Spanish speaking students recite the prayers – using the correct pronunciation and accent placement. One of our prayers (the Catholic Prayer) repeats the word ojalà several times in this prayer. As I was listening to our student, Wendy, recite this prayer and the word ojalà was repeated, I was drawn to how beautiful that word sounded with the correct pronunciation and the accent in the correct place. After the ‘Amen’ and we thanked and hugged our patient good-bye, I shared with our prayer group how beautiful that word sounded. Wendy shared with us ojalà means hopeful or having hope. Webster’s dictionary defines it as meaning “hopefully” or “let’s hope so”. This word comes from the Arabic phrase “inshallah” which means “God-willing” and is also used to reflect the hope that something will happen.
So, this is where my thoughts are with my blog. Where is my “ojalà”? What is my “ojalà”? I am ever hopeful for the beautiful people of Guatemala. The work that is being done by our beautiful friends and colleagues at La Ciudad de la Esperanza is truly remarkable and I am hopeful it continues. I am hopeful that our week in clinic was beneficialto the people of Coban. I am hopeful that this experience played an important role for our students on their journey to their medical careers. I am hopeful the students will look back on this experience often and rekindle the fire that I saw in them this week. I am hopeful our service project will continue to grow and build sustainability for Coban and its surrounding communities. I am hopeful for our medical team that we continue to be good stewards of knowledge, kindness, generosity, peace, and above all, love. Ojalà is a beautiful word – and I am hopeful you can experience its beauty.
Dr. Eric Bertelsen
We Are All La Ciudad
Patient care in La Ciudad de Esperanza (ACE)
When we think about healthcare and patient care, we think about doctors being able to diagnose us and refer us to treatments or further procedures in a streamlined process. Diagnosis can happen quite mechanically and doesn’t always require providers to go beyond medical history and relevant information. Our medical team, however, will always want to know every patient at ACE personally. Even then, diagnosis doesn’t always happen and treatments aren’t always readily available. With a lack of resources and equipment in this clinic, our team’s providers can only offer so much or are only able to alleviate their pain, all within the short period of one week.
Our clinic’s patients, like any patients in the US, came with questions about their health and expected resolutions. However, the science aspect of healthcare is not a standalone and is the least emphasized in patient care. Guatemala’s healthcare system is limited, but our medical team maintains strong dedication to our patients. They are deeply attentive to the complex lives of this marginalized population, whose hardships vary between each person and greatly contribute to their health. This could be seen in the exam room of Dr. Felipe who often said, after most appointments, that more could have been done for the patients had they been in the US. He understood how much burdence his patients shouldered from traumas and hardships of poverty and how this reflected in their physical pain. This was especially true for the women that came to our clinic. In the Latin machismo culture, they faced criticism over their children’s welfare and were blamed for their children’s health issues. While she was helping a patient, Dr. Deb noted how the patient carried the pain of losing her child in her shoulders, hence creating extreme tension in her muscles there. In another case, Dr. Lauri caused a mother to burst into tears when she remarked how her son made up for his blindness with a vibrant personality.
Is our little clinic doing enough for this community? The answer may not be clear to some. However, the Hippocratic Oath calls for our providers to “benefit my patients according to my greatest ability and judgment, and I will do no harm or injustice to them.” They uphold this value in its truest sense by allowing the patients to acknowledge their pain and experience, by giving visibility to the patients who might just be at the bottom of the social hierarchy. By coming to the clinic, these patients are able to make sense of their suffering, are reminded to continue taking care of themselves, to keep listening to their own body, the soundness of their mind, and their heart. The clinic of ACE may be lacking in technology to make diagnosis. But our medical team sustains quality patient care in the midst of challenges, in anticipation that our healthcare would one day be completed with resources, and that we will soon reach full capacity.
Lastly, I would like to personally thank…
Dr. Eric for showing us your passion for patient care during consultation
Dr. Deb for teaching us about the connection between spirituality and physical wellbeing in PT
Dr. Christian for showing how art and dentistry are combined in healthcare
Dr. Felipe for your sincere dedication and consolation for every patient
Dr. Stephanie & Nurse KK for your patience during triage and your firm but compassionate reminder of “patient first”
Ricky & Mary for keeping the team afloat and working so hard behind the scenes
Dr. Lauri for showing us your bird trick that brought the brightest smiles and amusement to the pediatric patients
And my fellow students and everyone in our team that made this trip happen!
A Hurricane of Emotions
A Dose of the Guatemala Blues
My turn . . . "Take all your electronics and make sure they aren’t overlapping." (Me: Ma'am do the electronics need to go in another bin?) "Take out all electronics and make sure they aren’t overlapping." (Me: Places things in bin as best as I can but fast as we are rushed through security after customs) "MA'AM! Put ya shoes over here!" (Me: I sorrowfully move my shoes to the other bin where my carry on is and step back as dictated to do).
Preparing myself for be inevitable “random” screening, like hope on hope, the line for regular TSA precheck type screening opens. I called to Dr. Christian, grabbed Nurse Kristen (aka KK) and we sauntered, through with melancholy and one last squeeze I could give Nurse Kristen, through the X-ray machine. As we make it to the other side, Dr. Christian and I must quickly grab our bags, see if eating is possible, and hustle to our gate. I look up and Nurse Kristen’s bag has been stopped for screening. With no minutes to spare, I too yell out, “KK, we are going.” Choking tears, moving away from what is and will continue to be a spiritual experience. This was our welcome back to the US. It is always like this - every single year. Harsh. Cold. Jarring. Culture shock. A stark contrast to the “Bienvenidos a Guatemala” delivered with a smile upon our arrival last Sunday in Guatemala City. I noticed this year when we arrived, there was a TSA agent at every corner of the ramp we took to enter La Aurora Intl Airport in Guate city. Each one of them welcoming us with the cariño I’ve come to deeply respect and appreciate.
You may read our blogs and read that we call the Guatemalan people a caring, kind, welcoming, and generous people. This is easily noted in our first and last experiences traveling together as a team. The sense of humanity, human sensitivity, the human condition, and the respect for one another seems to be etched into the fabric that is Guatemala. El tejido de amor/cariño/amistad puedo decir. This tejido feels like it is woven into my own neural networks while in Guatemala and somehow calms my mind, spirit, and unpredictable body. Upon return, it feels I am lined up, like a cattle on its way to the rainbow bridge, to have the tejido ripped from my neural pathways. But as tears well up, I fight against the surgeons that would like to desensitize me to what I have experienced in Guatemala so that I might return quickly to the status quo. I fight, as we ask our students to fight, not to turn away from the tension of walking in solidarity with others, but to lean into it, marinate in it, struggle in it. It was incredible to be back in Cobán, with my friends and colleagues, moving our collaborative effort forward after missing last year (thanks to COVID). I
truly missed Juan Pablo, Esmeralda, Rosario, Padre Sergio and the incredible group of human beings that make Esperanza live up to its name. I had the great pleasure of finally meeting Dr. Ricardo in person after a year of zoom and whats app video calls. It felt like we already knew each other. This group is like the real life Avengers and remain incredible examples of what it means to live your life with purposeful action and carry a welcoming spirit with you every day.
We are blessed to have this relationship with the Ciudad de la Esperanza team. As I reflect on this year’s experience diving face first into the clinic’s new electronic medical record, meeting the nursing and medical students completing their rotations from local Guatemalan universities, and all the inside jokes we have developed “entre jefes,” I am left with a glimmer of light which inspires me to continue making good trouble. It was amazing to finish clinic and review the patients requiring follow up and be able to sit with Dr. Ricardo and Nurse Esmeralda and simply schedule the follow up visits right then and there. The dream of collaborating to develop sustainable health care solutions for this community feels so much closer than ever before. Dare I say, it feels as though we will realize this dream and exceed it as we have been planning bigger collaborations in the area. I struggle every year to leave and it seems as I get older and gain clarity on the world I’d like to live in, leaving only becomes harder. Apparently, my wish to stay in Guatemala is also clear to others as I was told today that “I looked so sad” while in a meeting. It’s true, I have the Guatemala blues. I find myself missing the friendship . . . The personhood we experience there. I miss working with my incredible Guatemalan and US colleagues. I miss the feeling of a community caring about each other. I miss the feeling of true respect, kindness, and compassion. So yes, I’ll look sad for a few more days and eventually I will normalize. For now, I must navigate the culture shock of re-entry by writing, texting my people repeatedly, and remembering the importance of our partnership with La Ciudad de la Esperanza.
The hope of better health will always outshine the blues of returning, always!
Saludos,
Dr. Stephanie Ibemere
We Don’t Need Eyes to See
We Don’t Need Eyes to See
Our last day of clinic this week began with a very special 5 year old. Fernando is a bright, articulate, innovative, fearless young man, who told nurse Kristen in triage that he was going to be a doctor when he grows up. He also happens to be blind. Fernando was born prematurely and the oxygen that he needed after birth to keep him alive severely damaged his eyes. I had Mila in the peds room with me that morning. Her mom is a NICU nurse. I told Mila that her mother would know all about retinopathy of prematurity. Oxygen damages the fragile retina in babies. It is a well-known risk for premies, and with appropriate, early intervention with pediatric ophthalmologist usually vision can be spared. But Fernando wasn’t offered any intervention until it was far too late. His mother shared with us through tears her early journey of becoming a mother to a young boy who will never see. She is a remarkable advocate for him. She takes the 5 hour journey to Guatemala City once a month to see specialists and has found a school for the blind in the city that he attends virtually. The burden of his disability weighs heavily on her. But it really doesn’t seem to weigh at all on Fernando. Kids who have such a major deficit from birth or a young age often compensate very well. When Fernando entered the pediatric room he immediately went about exploring the room with his hands. He was knocking things off the table and bumping up against the people in the room. He had no problems climbing up on to the exam table and was a shining star for his exam. He really, really loved hearing the birds in his ears - “pajaritos!”
As we were wrapping up with his visit and walking him over to see Dr Deb in PT so she could work with him and his mom on some therapy skills visually impaired people need, I found myself thinking of Stevie Wonder and my husband. Chris has been a lifelong admirer of Stevie Wonder, he can still tell you about his memory of his older brother Johnny bringing home the album “Songs in the Key of Life.” Chris has written extensively on Stevie’s music and actually has an entire chapter of his book The Artist Alive on Stevie in the context of theology. Stevie’s early life story is not unlike Fernando’s. He was born prematurely with underdeveloped optic nerves and also got retinopathy of prematurity from oxygen in the NICU. His mom took him to doctors and faith healers as a young boy, determined to find a way to preserve his vision. Stevie remembers with disdain many episodes of strangers digging around in his eyes. Finally he told his mom, “Maybe God doesn’t mean for me to see. Maybe God meant for me to do, to be something else.”
By the time Stevie was 12 he had burst onto the music scene and he took Motown by storm. His last name was changed to Wonder because veteran musicians who saw him called him the 8th Wonder of the World.
If you are unfamiliar with the album “Songs in the Key of Life” you probably will recognize some song titles - “Isn’t She Lovely,” “Sir Duke,” and “Joy Inside My Tears.”
He is an incredible song writer. Perhaps the most poignant song on the album, and honestly one so pertinent to a community that is built on a landfill, is “Village Ghetto Land.” Chris has written extensively about this song. In one article, titled “‘The Street is for Celebration’: Racial Consciousness and the Eclipse of Childhood in America’s Cities,”Chris writes about how the song “Village Ghetto Land,” juxtaposes disturbing images of “life the way it is” in the city over the serene instrumentation of a chamber quartet:
Would you like to go with me/Down my dead end street
Would you like to come with me/To Village Ghetto Land?…
Children play with rusted cars/Sores cover their hands
Politicians laugh and drink/Drunk to all demands
Having briefly visited the landfill just before clinic the same morning we all met Fernando, this song takes on real world significance.
In my experience with children who are born with a major disability or who have one thrust upon them at a young age, they often adjust - sometimes they adjust even better than their parents. Kids tend to figure things out. Fernando was one of those kids. His mom, understandably, is still trying to figure things out. She knows what he is missing, and what challenges lie ahead for him. He really doesn’t. Young Stevie Wonder didn’t either. Both of their mothers were in a time of mourning a loss their children felt in such a different way. I look forward to following along in Fernando’s life to see what God meant for him to be. He clearly did not need eyes to see that day in clinic.
Lauri Pramuk, MD
First Day
The Warmth of Guatemala
Thinking about Camus
Laugh, Pray, and Play
Thank you
To better understand the needs of the community in Coban, we’re conducting a community needs assessment (CNA). The purpose of the CNA is to broadly evaluate the basic needs within the community such as health, safety, housing, food, water, education, and employment. Students and several health professionals who reside in the community interviewed patients at the clinic. These students and health professionals are from the disciplines of social work, psychology, and nursing. Our hope is to better understand and meet the needs of the community by gathering these data. Further, we plan to apply for grant funding and these data will enable us to share quantitative assessment data with prospective funders.
A thank you to our Regis University students...
~ thank you for caring deeply about the Guatemalan people
~ thank you for thinking seriously about inequities for indigenous people
~ thank you for engaging fully with every single patient you met
~ thank you for opening your hearts, minds, and souls
~ thank you for serving as positive role models for my daughter
~ thank you for wanting to make this world a better place one person at a time
~ thank you for embracing differences and finding similarities in our humanness
~ thank you for joining me as we learn and grow together
~ thank you for providing culturally competent care
~ thank you for showing empathy and compassion in your actions and words
Go...set the world on fire!
St. Ignatius of Loyola
Dr.Tristen Amador
The Shared Dreams in Coban
THE SMELL OF IMPOVERISHMENT
A Gift
I read this poem in our debriefing session this evening (Wednesday 6/1). We wanted to share it with our readers and one another.
The poet is Denise Levertov (1923-1997), a great great human being and a brilliant poet.
Fr. Kevin Burke, S.J.
A Gift
Just when you seem to yourself
nothing but a flimsy web
of questions, you are given
the questions of others to hold
in the emptiness of your hands,
songbird eggs that can still hatch
if you keep them warm,
butterflies opening and closing themselves
in your cupped palms, trusting you not to injure
their scintillant fur, their dust.
You are given the questions of others
as if they were answers
to all you ask. Yes, perhaps
this gift is your answer.
